Name: Advancing healthcare access on Inclusivity and Disability
Uploaded: 2023-08-24T04:50:46.655Z
Duration: 308.87
Description: In this insightful video, disability advocate Emma Gierschick emphasizes the vital need for inclusivity in healthcare settings. Drawing from her experiences as a full-time caregiver for her daughter with Down syndrome and an intellectual disability, Emma discusses the barriers individuals with disabilities encounter.

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The way that the healthcare

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settings can include, policies

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and design to help include

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everybody with a disability

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would be to communicate with

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them and to engage people

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with a disability who are the

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experts in their particular

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needs when they're looking

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at making policies and

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procedures and processes.

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It's very important 'cause

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these are the experts.

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I would say that the major

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barriers that people with

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a disability face in a

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healthcare setting are

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around accessibility.

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And that can be the physical

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accessibility, and it can

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also be the accessibility

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to the specialists.

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It can also have complex

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health needs and need to

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see multiple specialists

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at, over a period of time.

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And so they can find

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themselves going backwards

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and forwards to multiple

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appointments instead of them

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being linked up together.

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To make it a

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little bit easier.

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There's also barriers around

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the awareness of health

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professionals, and how much

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knowledge they've got of

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the person's disability or

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communication challenges

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where they're talking in terms

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that might be difficult for

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somebody with an intellectual

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disability or a communication

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difficulty to understand.

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But one thing that is

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important is that people

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with a disability want to be

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spoken to as an individual.

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They don't want somebody

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to speak over them as

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though their, their opinion

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isn't of importance.

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The way that the healthcare

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settings can include, policies

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and design to help include

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everybody with a disability

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would be to communicate with

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them and to engage people

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with disability who are the

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experts in their particular

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needs when they're looking

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at making policies and

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procedures and processes.

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It's very important 'cause

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these are the experts.

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So don't make decisions

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and don't introduce things

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unless you've actually got

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a panel that includes people

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with lived experience or

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you're doing surveys or

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you're talking to parents.

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So you can find out

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what the, the needs.

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Really are and what,

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what is of most benefit,

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but I think also to be

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mindful as well, that

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it's very difficult to

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do a universal design.

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There has to be flexibility

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around that because one

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design does not fit all.

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It is vital that people with

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a disability are included at

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all levels of, collaboration,

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all levels of policy making.

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All levels of communication,

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in terms of how they can

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best be supported within

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the healthcare system.

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So you, you can't make

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decisions unless you

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actually are walking in

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somebody else's shoes.

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I think the top priorities for

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policy makers and governments

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and decision makers,

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Regarding making decisions

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that include, that are about

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people with a disability

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are that they include people

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with a disability, they

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get feedback, they ask do,

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you know, provide surveys.

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They, actually ask

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people, what do they need?

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What do they want?

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What would better serve them?

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How can the service that is

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being provided be improved?

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And to not just listen, but

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to actually act on it and

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take the comments on board.

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And I think one of the things

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that's really important

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is to make sure that the

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information that's provided

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is actually acted upon.

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So it's not just rhetoric and

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doing a, a paper exercise that

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it is acted on and there's

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a timeframe and there's also

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a review period as well to

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see if the policies and the

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things that have been put in

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place are actually working and

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if they need to be tweaked,

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the way that we can increase

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awareness of disabilities in

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within the healthcare setting

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is, following a model that

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Down Syndrome Australia have

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in implemented this year.

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And they have employed 10

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people with a disability or

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people with Down Syndrome and

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an intellectual disability

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as a health ambassador.

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So these people are paid award

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wages and their job is to go

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out to hospitals and to go out

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to medical settings and go to

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universities and talk to the

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students and the practitioners

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and the policymakers

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and actually speak.

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With the voice of the

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lived experience about

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what can support them, and

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people with an intellectual

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disability to when they

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have to access healthcare.

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So again, it's about going

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back and listening to the

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voice of the lived experience.

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But there are ambassadors

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and I think what would be

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really helpful would be for

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people with other disabilities

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to also be employed at

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support at award wages.

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That can also be a

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representative voice.

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To policy makers about

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what, um, can be done

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to help serve them.

Expert Insight

In this insightful video, disability advocate Emma Gierschick emphasizes the vital need for inclusivity in healthcare settings. 

Drawing from her experiences as a full-time caregiver for her daughter with Down syndrome and an intellectual disability, Emma discusses the barriers individuals with disabilities encounter. 

Disability

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Emma Gierschick OAM

Order of Australia l AFR 100 Women of Influence l Woman of the Year

Barriers in healthcare accessibility and specialist services

Engaging experts with disabilities in policy and design

Empowering policy for disabilities

A model from down's syndrome Australia

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Advancing healthcare access on Inclusivity and Disability